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1999 Conference

"Affirming Life In the Face of Death"

A Comprehensive Look at End-of-Life Issues

University of Nebraska East Campus Student Union

Thursday, April 22, 1999

Conference Executive Summary:

By all accounts, the Nebraska Coalition for Compassionate Care’s first major public event was a tremendous success. Held at the East Campus Student Union of the University of Nebraska in Lincoln, the conference drew 275 participants, representing over 60 Nebraska communities and the neighboring states of Iowa, South Dakota and Kansas.

"Affirming Life in the Face of Death" was co-sponsored by the Nebraska Hospice Association and the Nebraska Medical Association, as well as the Metropolitan Omaha and Lancaster County Medical Societies and the Greater Nebraska Medical Caucus. The diversity of sponsorship was a key to the conference’s success and was reflected in the categories of attendees: physicians (more than 30), nurses, hospice care workers, social workers, educators, and Nebraska legislative aides.

 

While the attendance was large, the conference fees were modest; thus the event relied upon--and is deeply grateful for--the financial support of the following generous contributors: Purdue-Frederick, St. Elizabeth Regional Medical Center, Alegent Health, St. Francis Medical Center, Creighton University Center for Health Policy and Ethics, Hospice Care of Nebraska Foundation, Good Samaritan Hospital, Madonna Rehabilitation Hospital, Faith Regional Health Services, and Saint Joseph Hospital.

 

The Coalition’s Operations Board Chair, Greg Schleppenbach, served as master of ceremonies for the day. Plenary sessions featured four nationally and internationally-known speakers: Dr. Robert Orr of Loma Linda University in California, Professor Henk ten Have of the Netherlands, Dr. Dewitt Baldwin of the American Medical Association, and Dr. Ira Byock of Montana, who is Immediate Past President of the American Academy of Hospice and Palliative Medicine. One plenary session speaker remarked that part of his excitement in coming to the conference was the opportunity to hear the others on the program!

In his presentation "Is Physician-Assisted Death Ever Justified?" Dr. Orr gave a helpful account of key terms, distinctions, and arguments surrounding end-of-life issues--e.g., the distinction between euthanasia or assisted suicide and the foregoing of useless medical treatment. Dr. ten Have spoke about "European Experiences with Terminal and Palliative Care," and pointed to legal and cultural differences between the Netherlands and the United States which impact decisions at the end of life.

Representing the AMA, Dr. Baldwin described the professional association’s major new undertaking, know as EPEC (Educating Physicians in End-of-Life Care). To date, one Nebraska physician has participated in the program. Others at the conference were clearly interested. In an afternoon session and in the banquet keynote address, Dr. Byock gave highly charged and moving accounts of his involvement in hospice care, as well as his significant research on personal growth and development among patients in the final stages of life.

In addition to the plenary sessions, participants selected from eight different breakout sessions (some repeated), on topics ranging from Pastoral and Spiritual Concerns to Ethics of the Clinical Encounter to Pain Management and Issues of Public Policy.

The evening banquet featured a presentation of annual service awards by the Nebraska Hospice Association. NCCC members joined our co-sponsors in congratulating several outstanding professionals and volunteers who are on the "front lines" of compassionate care in the state.

 

John W. Carlson, Ph.D.

Brief Biographical Data--Faculty

Dewitt C. Baldwin, Jr., MD, graduated from Swarthmore College, Sheffield Scientific School at Yale, Yale Divinity School, Yale Medical School, University of Minnesota and Yale Graduate Schools. He is a diplomat of the National Board of Medical Examiners, American Board of Pediatrics, American Board of Family Practice and is certified by the American Association of Psychiatric Clinics for Children. He is Professor Emeritus of Psychiatry and Behavioral Sciences, University of Nevada Medicine, Adjunct Professor of Clinical Psychiatry, Northwestern University Medical School, Senior Associate, Scholar-In-Residence and Acting Asst. VP for Ethics, AMA Institute for Ethics. He has published over 150 articles and three books.

Ira R. Byock, MD has been involved in hospice and palliative care since 1978. Immediate Past President of the American Academy of Hospice and Palliative Medicine, he currently directs the new Robert Wood Johnson Foundation program, Promoting Excellence in End-of-Life Care, and The Palliative Care Service in Missoula, Montana. He is founder and President of the Missoula Demonstration Project, Inc., a community-based organization dedicated to the research and transformation of the end-of-life experience. He is author of the book Dying Well and has been a featured guest on many national television and radio programs.

Robert D. Orr, MD, is Director of Clinical Ethics and Clinical Co-Director of the Center for Christian Bioethics at Loma Linda University Medical Center. He received his degree from McGill University, went on to private practice in Vermont for 18 years, honored in 1989 as "Vermont Family Doctor of the Year". From 1989-90 he pursued a postdoctoral fellowship at the Center for Clinical Medical Ethics at the University of Chicago. A past chair and member of the Ethics Commission of the Christian Medical-Dental Society, he currently chairs the Council on Ethical Affairs of the California Medical Association and is VP of the American Society for Bioethics and the Humanities. He has co-authored or edited two books and 70 articles on ethical issues, end-of-life care, and the ethics consultation process.

Henk ten Have, MD, PhD, studied medicine and philosophy at the University of Leiden, Netherlands, completing doctoral dissertations in pathology and philosophy of medicine. In 1991, he became Chair of the Department of Ethics, Philosophy and History of Medicine at the Catholic University of Nijmegen, School of Medicine. He is a founding member and secretary of the European Society for Philosophy of Medicine and Health Care and has been involved in numerous international research programs. Currently, he directs a European Union funded research project on palliative care that involves seven European countries. He has published more than 200 articles, chapters and books, is on the editorial board of 12 professional journals and is editor-in-chief of Medicine, Health Care and Philosophy.

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