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"Affirming
Life In the Face of Death"
A Comprehensive Look
at End-of-Life Issues
University of Nebraska
East Campus Student Union
Thursday, April 22,
1999
Conference Executive Summary:
B y all accounts, the Nebraska Coalition for
Compassionate Care’s first major public event was a tremendous success. Held
at the East Campus Student Union of the University of Nebraska in Lincoln, the
conference drew 275 participants, representing over 60 Nebraska communities and
the neighboring states of Iowa, South Dakota and Kansas.
 "Affirming
Life in the Face of Death" was co-sponsored by the Nebraska Hospice
Association and the Nebraska Medical Association, as well as the Metropolitan
Omaha and Lancaster County Medical Societies and the Greater Nebraska Medical
Caucus. The diversity of sponsorship was a key to the conference’s success and
was reflected in the categories of attendees: physicians (more than 30), nurses,
hospice care workers, social workers, educators, and Nebraska legislative aides.
While the attendance was large, the conference fees were modest; thus the
event relied upon--and is deeply grateful for--the financial support of the
following generous contributors: Purdue-Frederick, St. Elizabeth Regional
Medical Center, Alegent Health, St. Francis Medical Center, Creighton University
Center for Health Policy and Ethics, Hospice Care of Nebraska Foundation, Good
Samaritan Hospital, Madonna Rehabilitation Hospital, Faith Regional Health
Services, and Saint Joseph Hospital.
The Coalition’s Operations Board Chair, Greg Schleppenbach, served as
master of ceremonies for the day. Plenary sessions featured four nationally and
internationally-known speakers: Dr. Robert Orr of Loma Linda University
in California, Professor Henk ten Have of the Netherlands, Dr. Dewitt
Baldwin of the American Medical Association, and Dr. Ira Byock of
Montana, who is Immediate Past President of the American Academy of Hospice and
Palliative Medicine. One plenary session speaker remarked that part of his
excitement in coming to the conference was the opportunity to hear the others on
the program!
In his presentation "Is Physician-Assisted Death Ever Justified?"
Dr. Orr gave a helpful account of key terms, distinctions, and arguments
surrounding end-of-life issues--e.g., the distinction between euthanasia or
assisted suicide and the foregoing of useless medical treatment. Dr. ten Have
spoke about "European Experiences with Terminal and Palliative Care,"
and pointed to legal and cultural differences between the Netherlands and the
United States which impact decisions at the end of life.
Representing the AMA, Dr. Baldwin described the professional association’s
major new undertaking, know as EPEC (Educating Physicians in End-of-Life Care).
To date, one Nebraska physician has participated in the program. Others at the
conference were clearly interested. In an afternoon session and in the banquet
keynote address, Dr. Byock gave highly charged and moving accounts of his
involvement in hospice care, as well as his significant research on personal
growth and development among patients in the final stages of life.
In
addition to the plenary sessions, participants selected from eight different
breakout sessions (some repeated), on topics ranging from Pastoral and Spiritual
Concerns to Ethics of the Clinical Encounter to Pain Management and Issues of
Public Policy.
The evening banquet featured a presentation of annual service awards by the
Nebraska Hospice Association. NCCC members joined our co-sponsors in
congratulating several outstanding professionals and volunteers who are on the
"front lines" of compassionate care in the state.
John W. Carlson, Ph.D.
Brief Biographical Data--Faculty
Dewitt C. Baldwin, Jr., MD,
graduated from Swarthmore College, Sheffield
Scientific School at Yale, Yale Divinity School, Yale Medical School, University
of Minnesota and Yale Graduate Schools. He is a diplomat of the National Board
of Medical Examiners, American Board of Pediatrics, American Board of Family
Practice and is certified by the American Association of Psychiatric Clinics for
Children. He is Professor Emeritus of Psychiatry and Behavioral Sciences,
University of Nevada Medicine, Adjunct Professor of Clinical Psychiatry,
Northwestern University Medical School, Senior Associate, Scholar-In-Residence
and Acting Asst. VP for Ethics, AMA Institute for Ethics. He has published over
150 articles and three books.
Ira R. Byock, MD
has been involved in hospice and palliative
care since 1978. Immediate Past President of the American Academy of Hospice and
Palliative Medicine, he currently directs the new Robert Wood Johnson Foundation
program, Promoting Excellence in End-of-Life Care, and The Palliative
Care Service in Missoula, Montana. He is founder and President of the Missoula
Demonstration Project, Inc., a community-based organization dedicated to the
research and transformation of the end-of-life experience. He is author of the
book Dying Well and has been a featured guest on many national television
and radio programs.
Robert D. Orr, MD, is
Director of Clinical Ethics and Clinical Co-Director of the Center for Christian
Bioethics at Loma Linda University Medical Center. He received his degree from
McGill University, went on to private practice in Vermont for 18 years, honored
in 1989 as "Vermont Family Doctor of the Year". From 1989-90 he
pursued a postdoctoral fellowship at the Center for Clinical Medical Ethics at
the University of Chicago. A past chair and member of the Ethics Commission of
the Christian Medical-Dental Society, he currently chairs the Council on Ethical
Affairs of the California Medical Association and is VP of the American Society
for Bioethics and the Humanities. He has co-authored or edited two books and 70
articles on ethical issues, end-of-life care, and the ethics consultation
process.
Henk ten Have, MD, PhD,
studied medicine and philosophy at the
University of Leiden, Netherlands, completing doctoral dissertations in
pathology and philosophy of medicine. In 1991, he became Chair of the Department
of Ethics, Philosophy and History of Medicine at the Catholic University of
Nijmegen, School of Medicine. He is a founding member and secretary of the
European Society for Philosophy of Medicine and Health Care and has been
involved in numerous international research programs. Currently, he directs a
European Union funded research project on palliative care that involves seven
European countries. He has published more than 200 articles, chapters and books,
is on the editorial board of 12 professional journals and is editor-in-chief of Medicine,
Health Care and Philosophy.

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